Titre du document / Document title

Assessing psychosocial distress in diabetes: Development of the Diabetes Distress Scale

Auteur(s) / Author(s)

POLONSKY William H. ⁽¹⁾ ; FISHER Lawrence ⁽²⁾ ; EARLES Jay ⁽³⁾ ; DUDL R. James ⁽⁴⁾ ; LEES Joel ⁽⁵⁾ ; MULLAN Joseph ⁽²⁾ ; JACKSON Richard A. ⁽⁶⁾ ;

Affiliation(s) du ou des auteurs / Author(s) Affiliation(s)

⁽¹⁾ Department of Psychiatry, University of California, San Diego, California, ETATS-UNIS
⁽²⁾ Department of Family and Community Medicine, University of California, San Francisco, California, ETATS-UNIS
⁽³⁾ Tripler Army Medical Center, Honolulu, Hawaii, ETATS-UNIS
⁽⁴⁾ Kaiser Permanente, San Diego, California, ETATS-UNIS
⁽⁵⁾ Naval Medical Center, San Diego, California, ETATS-UNIS
⁽⁶⁾ Joslin Diabetes Center, Harvard Medical School, Boston, Massachusetts, ETATS-UNIS

Résumé / Abstract

OBJECTIVE- The purpose of this study was to describe the development of the Diabetes Distress Scale (DDS), a new instrument for the assessment of diabetes-related emotional distress based on four independent patient samples. RESEARCH DESIGN AND METHODS- In consultation with patients and professionals from multiple disciplines, a preliminary scale of 28 items was developed, based a priori on four distress-related domains: emotional burden subscale, physician-related distress sub-scale, regimen-related distress subscale, and diabetes-related interpersonal distress. The new instrument was included in a larger battery of questionnaires used in diabetes studies at four diverse sites: waiting room at a primary care clinic (n = 200), waiting room at a diabetes specialty clinic (n = 179), a diabetes management study program (n = 167), and an ongoing diabetes management program (n = 158). RESULTS- Exploratory factor analyses revealed four factors consistent across sites (involving 17 of the 28 items) that matched the critical content domains identified earlier. The correlation between the 28-item and 17-item scales was very high (r = 0.99). The mean correlation between the 17-item total score (DDS) and the four subscales was high (r = 0.82), but the pattern ofinterscale correlations suggested that the subscales, although not totally independent, tapped into relatively different areas of diabetes-related distress. Internal reliability of the DDS and the four subscales was adequate (a > 0.87), and validity coefficients yielded significant linkages with the Center for Epidemiological Studies Depression Scale, meal planning, exercise, and total cholesterol. Insulin users evidenced the highest mean DDS total scores, whereas diet-controlled subjects displayed the lowest scores (P < 0.001). CONCLUSIONS- The DDS has a consistent, generalizable factor structure and good internal reliability and validity across four different clinical sites. The new instrument may serve as a valuable measure of diabetes-related emotional distress for use in research and clinical practice.

Revue / Journal Title

Diabetes care   ISSN 0149-5992   CODEN DICAD2 

Source / Source

2005, vol. 28, n^o3, pp. 626-631 [6 page(s) (article)] (19 ref.)

Langue / Language

Anglais

Editeur / Publisher

American Diabetes Association, Alexandria, VA, ETATS-UNIS  (1978) (Revue)

Mots-clés anglais / English Keywords

Endocrinopathy ; Human ; Psychological distress ; Methodology ; Tool ; Emotional Distress Scale ; Social aspect ; Public health ; Diabetes mellitus ;

Mots-clés français / French Keywords

Endocrinopathie ; Homme ; Détresse psychologique ; Méthodologie ; Outil ; Emotional Distress Scale ; Aspect social ; Santé publique ; Diabète ;

Mots-clés espagnols / Spanish Keywords

Endocrinopatía ; Hombre ; Desamparo psicológico ; Metodología ; Herramienta ; Emotional Distress Scale ; Aspecto social ; Salud pública ; Diabetes ;

Localisation / Location

INIST-CNRS, Cote INIST : 18054, 35400012709813.0210